Hi. My name is Misty but, my friends call me MD. I am 35 years old from the little town of Maple Lake Minnesota. I am now living in St. Cloud, I moved here in 2002. I was born with Cerebral Palsy (CP) and I have significant lower extremity weakness and atrophy with spasticity requiring bilateral ankle AFOs and use a wheelchair for mobility.
Friday, June 3, 2016
Mean Misty
All it takes is for mean Misty to appear and demand that she have an answer about her appointment by the end of Friday and I got it
Not even five minutes later after I called the company back I got an answer from the company that's taking me down to get my pump filled so they will be here at 11:30 on Wednesday to pick me up to take me to the cities and bring me home
I have no idea why it takes me to get to the point where I'm angry on the phone and yelling at people to get some answers and telling them that this could turn into a medical emergency if I do not get down there to get my pump filled seems to be the way to go to get answers to get my ride setup before the weekend so that I don't have to worry about it next week
I sincerely hope one day that things for people with disabilities will change and that they will be much easier if we will not have to be so concerned about getting places and getting things done it's not the way it should be everyone should be treated equally and after the past couple weeks realizing that people are just not considerate it's about what matters to them and not about what matters to the people that are most important in some cases
My ride.....
My ride to get my pump filled is still up in the air....I'm completely nervous now I called 3 times yesterday and to see if it was lined up and if they got the information and they still haven't got anything by 3 o'clock
So here I go again it's 8 o'clock in the morning on Friday and I'm trying to get my ride lined up for my appointment on Wednesday next week
Which means not counting the weekend and not counting Wednesday because I have to go on Wednesday I have two days before I am supposed to go to the cities to get my pump filled and if I don't get down there it's really going to be an emergency I don't think they realize how bad it will get if I don't get down there on time to get my pump filled
Really nervous and completely not happy with this company
Thursday, June 2, 2016
Thank You!!!
All the hard work is worth it when you get letters like this!!!
Giving back does not always have to consist of money
I am so proud to be who I am today and be where I am today and that I've accomplished so much
Thought for today
Thought for today
I'm so glad my mom taught me some control and how to respect people.....because right now there's a bunch of people that need to be yelled at but because of the person I am I'm not going to do that
As a person that has a disability why do I get so disrespected.....I try so hard to be a person and to help out the community as much as I can but yeah I need something medically something always goes wrong and it's so hard to get what I need.....I'm not stupid and I know what's going on around me
My Hope for one day is that we all get treated the same no matter if we're sitting in a wheelchair or use a cane or Walker we all need to be treated the same because right now I'm really frustrated with some things but I'm trying to accomplish......all I get is answering machines with no answers 4 weeks now that's all I've been getting.....not fair that's all I'm saying
If you're an able-bodied person please don't take things for granted because one day you may be in my situation and it's going to suck
Wednesday, June 1, 2016
Overwhelmed
Feeling a little frustrated and overwhelmed
I just got a phone call about my ride down to the cities to get my pump filled and it looks like I will be taking a different company down there not sure why
So now I don't know when they're picking me up yet again
I get really nervous when it comes to this because I know if I don't get my pump filled on time I get really sick and uncomfortable and I am already to the point where I'm uncomfortable so can you imagine it if I end up getting sick over this whole ordeal not good
Please say a little prayer if you have a little time that everything works out okay and that I get a ride and I make it down to the cities on the 8th
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