Saturday, July 25, 2015

Pump update

one more update for today I'm sorry it's a little late
here's the info about my appointment yesterday
my doctor and team are very pleased with my progress and they want me to just keep taking my time and learning my new self
and let them know as soon as possible should I need anything
we did not fill the pump yesterday it's a little too soon so they want me to come back next month on the 19th and they were try filling the pump then
they did not want to press on me and poke on me quite yet because I still do have a few stitches that are still working their way out
they want to give my body another month to heal before they start poking around to try to find the porch and please you don't worry I have enough medication in my pump to last that long
I actually found out yesterday that my pump is on a really low dose she decided to turn the pump down and I actually didn't even know until yesterday until the doctor said do you realize that your pump is on a really low dose and I said no did they turn it down and she goes yes we did turn it down
so that is probably another reason why often I am so tired at one point and another point I can be just fine and wide awake cuz my body is just adjusting to everything and she told me yesterday that it's probably going to be that way for a while you have to realize you went five years with maybe sometimes you were getting medication and maybe you weren't so your body is just adjusting to having a full time dose of medicine when you are supposed to get it
so friends as of now I'm just going to keep taking my days as they come in experiencing this new body of mine everyday because everyday is different and I'm just going to go from there like I've said before I will periodically give you updates on how I am doing
I love you all very much have a great night and I will see you in the morning love misty

From Misty

ok friends
I have had a lot of people ask me why my ex boyfriend is not talking to anyone in this building that I live in
I need to get this off my chest and I'm only going to say it once
I write about a lot of things so tonight I'm going to write about this
I have no idea why he's making the choices he's making and why he's doing the things he's doing I have no control over what he does
I have not really spoken to him since the day he broke up with me
I'm choosing to respect his choices and give him his space
I do not have to like his choices or agree with them but I'm giving him his space
now here's what I need from you friends
I need you to respect the fact that I don't know why he's making the choices he's making and why he's not talking to anyone in the building I personally don't know why
if you have questions you must go ask him because that's the person you must ask
as for myself my heart still hurts and I really don't have any answers myself so I'm asking you please do not ask me about him unless I bring it up I'm trying my hardest to deal with this in the best way I know possible
I am a strong confident woman but I'm not going to sit here and say seeing them everyday doesn't hurt because it does and I wish I had more answers than I do but I don't so I'm dealing with it in my own way so please give me my space and when I want to talk about it I will
my friends in my building have been fantastic and keeping me up on my toes like they always do no matter if I have a good day or bad day but they also give me my space and they seem to know when I need my space
like I said at the top of this post I'm only saying this once please respect the fact that I am respecting his choices and giving him in space if you need to know why he's doing the things he's doing you need to go ask him yourself because I have no answer for you I'm dealing with my emotions and trying to figure out things for myself please go ask him instead of coming to me
if I want to talk about this whole situation I will come to you and talk to you about it
please don't take any of this the wrong way but I needed to put it down somewhere and usually when I write a post it on Facebook because my page is private so it's not like everybody can see except for my friends
if you do not like this post just remove yourself from my friends list and that's all I have to say about this
I'm asking you one more time please respect my choices on this whole situation I love you all very much have a great night misty

Monday, July 13, 2015

New stuff for Misty's chains





Garden as of last week!



















From Misty 7- 13- 15

almost 2 months post surgery and on Thursday I go down to the cities and meet with my pump doctor
I'm not sure if we're going to make any changes to weigh the pump is set
I'm so grateful for this team of doctors that saved my life about 2 months ago
it still blows my mind to this day that at any point I could have died in those 5 years that I had that old pump inside of me
but yet today I'm completely healthy and have had no spasms in the past two months except for here and there but like I said my spasms are not gone so if I don't have this medication they will definitely come back
everyday I wake up completely grateful for how I feel and all healthy I am since I had surgery
I'm not going to sit here and say that every day is easy because its not been easy I'm learning this new body of mine and everyday is a new challenge
my legs are completely different and I have never had this feeling before I wish I could explain it to you more but I really don't know how to other than to give you updates here and there
so I promised friends that I will keep you updated on my progress
tomorrow when my PCA come I am going to get in my standard for the first time post surgery
keep your fingers crossed that goes well and if I have a chance I will update tomorrow and let you know how it went
well friends I think that's all for now I'm wishing you all a good night and I hope God holds you in his hands and keeps you safe
I will update again soon in a couple weeks so check back for more like I said this is a new road for me so please check back and keep me in your thoughts as I go on this new journey of mine I love you all very much Misty

First day back at the club!





Mmmmm Good!