My life as I know it!! On wheels!: May 2015

Wednesday, May 27, 2015

Look what mama and I did yesterday

Pump update

hi my sweet friends

I'm sorry for no updates

I am living in a completely different world

my life has changed so much and tomorrow will be a week since I got this new pump placed

I have my first follow up appointment with my primary doctor here in st. cloud tomorrow

this weekend I will try to put down on paper so you guys understand how much different I feel and how about it I feel it's just amazing I haven't had spasms since last Thursday morning it's incredible how I feel

I can't do it quite yet because I'm still learning my body and how it works and how it feels I'm still adjusting to the medication that I'm getting every day and really realizing that my spasms are almost completely gone however if I don't have this medication they will be there so I know its not gone

living with spasms and headaches for over 5 years with the pump that didn't work at all completely flabbergast me and I don't know how I did it

I can tell you that I am a very very strong woman for going through that for so long and realizing that I didn't have to at the end it shouldn't have been that way

so hang in there in this weekend I will give you a big huge update so you guys know how I am doing I'm still learning my new self as I'm going to say

and learning myself is a new step but as of now I can tell you I'm completely happy and I'm feeling fantastic

as my mama said yesterday you feel better don't you and I said yes mama I do it's like a new me

so hang in there and I will update as soon as I can I love you all very much and thank you for being by my side

Saturday, May 23, 2015

Garden

From Misty

Hi it’s Misty

First I have to start off with a big thank you to all the staff and doctors at Abbott Northwestern Hospital in the Twin Cities Minnesota

It is truly a miracle that I'm sitting here writing this update for you

Basically the doctor save my life the pump they took out was not in there correctly it was moving around it was not tied down like it was supposed to be and the catheter was too short and it was way too deep under the skin

That is why I was so sick all the time with all the bladder infections and feeling like crap because basically I felt like crap I was hiding it very well

My surgeon came out to my friends and family and told them I can't see how she made it as long as she did with that pump the way it was and it's a miracle that she's doing as well as she is doing right now

Never will I go back to the Saint Cloud hospital for a surgical procedure again. I almost died because of this pump basically not in so many words I could have possibly died at any time

I cannot tell you how much better I feel since this new pump has been placed and it is in there correctly and I feel amazing

Yes I will be very sore for a very long time but at least I know its in there correctly and I will be safe

Now to give you a little info on this new pump

They moved it from the lower part of my stomach to upper a part of my stomach rate below my ribs

They placed into a pocket and suture did that pocket and added more catheter to the catheter that was already there because the catheter was way too short

I also have to wear a brace for about a month to keep everything in place and so it doesn't move I go back to the doctor in about 2 weeks to get my stitches out and in about a week I go see my regular doctor just for a checkup to make sure I'm healthy

Thank you so much for all the love and support it means so much you just don't know

I'm so happy I found this doctor that is listening to me and that is helping me because I felt so crappy for so long that I thought it was never going to end

so once again I want to say thank you to everyone that have been by my side through this process

I still have a long road of recovery ahead but I know at least they need anything I can call my doctor at any point

I'm tired and I'm sore but I know that's to be expected but I can tell you this from the bottom of my heart I feel amazing and a hundred percent times better than I did Thursday morning before they put me asleep

I have a new appreciation for life absolutely I realize that life is way too short so friends don't take it for granted because it could be gone in a flash

I love you all very much and I will update again soon and remember have the best day you can have and enjoy that beautiful weather

Love misty Dawn

From Angie

Hey people!! Angie here once again!! Just thought I would let you all know Misty is home relaxing and enjoying the sun!! Have a great rest of the week!!

I know how much you all love hearing from me....ha ha!! It's Angie again- Misty asked that I tell you all thank you for everything and that she will be on to say more when she can. Right now she's just taking it easy, but fear not, she'll be back real soon!! Thank you everyone!!

Updates from Angie on Thursday!

Hello to all Misty's Facebook friends!! This is her best friend Angie and she asked me to keep you guys updated about her surgery. I just spoke with her Mom and she said that they were just finishing up and it sounded like things went well! Great to hear! Please keep Misty in your thoughts as she recovers and heals cause I know she would appreciate it! If I hear anything else, I will let you all know. And as Misty would say, have a great day!

Hello Facebook world!! It's Angie, Misty's friend again. I got a call this afternoon while at work, so this is the first chance I've had to update you all. Misty is headed home!! Great news!! I'm sure that she would tell you all thanks for the positive thoughts and to keep them coming as she heals at home!! As Misty's friend, I would like to thank you all for thinking of her at this time- she's been an awesome friend for long time and I too appreciate all the well wishes to her!! Once again, I know Misty would like to tell you all thank you!! smile emoticon

Surgery update

Surgery has been moved to 6am

Baby girl knows mom is going somewhere!!

Sunday, May 17, 2015

Just Pretty!

Surgeons office

Started my garden box!

Monday, May 11, 2015

From Misty

I thought I would give you a little update

I'm under two weeks till I have surgery

I have lots of appointments ahead but I'm going into this healthy and strong hopefully I will be home sooner than expected

Tuesday I go to physical therapy Thursday this week I go down to the cities and meet with the surgeon at 2:30 also on Thursday I meet with the Pumped team at 2 and the following Thursday which would be the 21st I will be having surgery I'm not sure what time or what room but once I know you will all know

I talk with my regular doctor and on the 18th to have a pre-op appointment

They did not say this was necessary but I kinda asked for this myself so that I know that I'm going into the surgery healthy and strong

Just a reminder I do not have my caring bridge site anymore I took that down due to some awful comments so do not look for updates on my caring bridge because they will not be on CaringBridge all updates will be on Facebook

The updates will be posted by myself or my friend Angie when she hears from me

with the time I have left in the next two weeks before I have this done I will be packing taking time for myself making sure my cat has what she needs and just taking care of myself that is the most important stuff right now

Check back on Thursday for another update I'm sure I will know the time of surgery

I love you all very much and just remember I have angels around me every day keeping me safe and healthy so when I go into the surgery I know I will be just fine..

And should I not wake up please know that I love you all very much and that I will be looking down on you from heaven and keeping you safe

I know it's kind of weird for me to write this down and tell you this now but I have to because I don't know what life is going to bring or how the surgery is going to go so I want you all to know that I love you very much no matter what happens

So just remember I will see you on the other side with a smile on my face as always I love you

Misty Dawn